Did you know?

•    The skin is the largest organ in the body and protects us from infection, viruses and bacteria

•    EB is a genetic skin condition (it cannot be 'caught') and the most serious form only occurs when two gene carriers have a child together

•    It causes a breakdown in the natural proteins that hold the skin together

•    The slightest touch can cause severe pain, blistering and sores

•    The skin blisters have to be lanced & dressed every day taking up to three hours

•    EB is currently incurable

•    In its most severe form, infants do not survive the condition

•    Life expectancy of adults can be cut dramatically shorted, by some 30-40 years

•    1 in 18,000 newborns are affected by EB in Ireland

•    Over 500,000 people have EB worldwide

•    1 in 227 of us carry the defective gene